Expert's Corner

 

Ask the Founder


VBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks.

 

Babies with Birthmarks™

Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

New Research Out of Boston


Dynamic Cooling Paper by Dr. Nelson and Wangcun Jia


Arterio-venous Malformations Powerpoint Presentation


PWS paper by Dr. Mihm and L. Rozell-Shannon


SWS Glaucoma Facts by L. Rozell-Shannon and Dr. Fay

Test for Birthmarks

Psychosocial and Emotional Issues for Individuals with a Port Wine Stain

Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

Ulcer Care and Treatment (pdf)

Vascular Birthmarks Foundation to Host

“Mark of Beauty” Gala, Conference AND AUCTION

- Organization Works to Increase Awareness & Support of

Serious and Misunderstood Anomaly -

New York -- October 17, 2008 -- The Vascular Birthmarks Foundation (VBF) will be hosting its “Mark of Beauty” Gala and 2008 Vascular Birthmarks Conference on November 14-15, 2008, in Manhattan.

VBF is an organization dedicated to helping children and families affected by birthmarks, tumors, and syndromes receive proper diagnosis and treatment. Dr. Linda Rozell-Shannon founded VBF after her daughter was born with a hemangioma on her lower lip and she was unable to find information on treatment options.

According to Dr. Rozell-Shannon, vascular birthmarks are a largely unreported medical phenomenon that affects one in ten children born annually; with approximately 40,000 being so significant that they require the opinion of a specialist. Since insurance companies frequently deny treatment and because there are so few treatment centers or specialists, many children are left with a severe deformity, breathing difficulties, eating issues, blindness and, in some cases, death.

“During initial diagnosis, 90-95 percent of doctors will say that nothing can be done,” says Dr. Rozell-Shannon. (Shannon earned her PhD in order to help families affected by these lesions.) “There is an urgent need to raise awareness in parents, as well as doctors, that there are critical treatment options available.”

Concerned parents will have an opportunity to have their children examined and diagnosed at the 2008 Vascular Birthmarks Conference on November 15, beginning at 8:30 a.m. This program, which will take place in conjunction with the Vascular Birthmark Institute at Roosevelt, at Beth Israel’s Phillips Ambulatory Care Center branch (10 Union Square East in Manhattan), will also include lectures by the top specialists in the country on the latest information in the diagnosis and treatment of these lesions. (Reservations are required.)

The Mark of Beauty Gala will be held on Friday, November 14 from 7:00 p.m. to 10:00 p.m. at the Hudson Theatre in the Millennium Broadway Hotel New York, 145 West 44th Street in Manhattan. The event will feature a musical performance by stars of “Phantom of the Opera”, hors d’oeuvres and open bar, and a silent auction of celebrity items.

The exciting auction items include guitars signed by Miley Cyrus and the Jonas Brothers; a bat signed by Reggie Jackson; a 2007 New York Giants signed helmet; a Derek Jeter signed and framed New York Yankees jersey; a Sandy Koufax signed and framed L.A. Dodgers jersey; a Magic Johnson signed/encased basketball; a Joe Montana signed/encased 49ers helmet; a David Wright autographed bat; Yankees, Mets, Giants, Jets, Patriots and Red Sox memorabilia; and other many other collectibles.

People can also bid on a NASCAR driving experience; a Fighter Pilot for a Day experience; a trip for 4 to the 2009 Masters; a Sonoma Wine Extravaganza; and VIP tickets to many events.

For information on the clinic, gala, and auction – and to make reservations and obtain tickets – please visit www.birthmark.org or contact Basia Joyce at (518) 374-2062 or basiajim99@nycap.rr.com.

VBF is also seeking corporate sponsors as well as donations of silent auction and gift bag items. (All donations are tax deductible.) Please contact Basia Joyce if you would like to contribute to this organization—which has had such a profoundly positive impact on more than 35,000 families worldwide.

About Vascular Birthmarks Foundation (VBF):

Vascular Birthmarks Foundation (VBF) is the leading not for profit in the world for families afflicted with vascular birthmarks, tumors or syndromes. It is an international organization that networks families to the appropriate medical professionals for evaluation and/or treatment and provides informational resources. VBF also sponsors physician education, research, and programs that promote acceptance for living with a birthmark. Programs include Babies with Birthmarks, Orphans with Birthmarks, and VBF Day of Awareness.

# # #


 

Parent's
Corner



Information for Parents

DOA Logo
Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness


Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission. Every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com

If you think your child has a hemangioma Click Here.
hemangioma
If you think you or your child has a port wine stain Click Here.
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here.
Before and after of venous malformation


Warning: include() [function.include]: URL file-access is disabled in the server configuration in /home/vbfvietn/public_html/includes/rightmenu.php on line 42

Warning: include(http://birthmark.org/includes/chapters.txt) [function.include]: failed to open stream: no suitable wrapper could be found in /home/vbfvietn/public_html/includes/rightmenu.php on line 42

Warning: include() [function.include]: Failed opening 'http://birthmark.org/includes/chapters.txt' for inclusion (include_path='.:/usr/lib/php:/usr/local/lib/php') in /home/vbfvietn/public_html/includes/rightmenu.php on line 42


Publications for Parents:

  • VBF Vascular Birthmarks Brochure - Download and Print - A comprehensive brochure describing all vascular birthmark types, syndromes and treatment options. To print, click here (you will need the Acrobat Reader to view and print this document).
  • Doctor Visit Survey Have you been seen by a doctor to assess a vascular birthmark? Please click here and complete our survey. This survey will be used to provide feedback to the doctors about the information and treatment they provide to families affected by a vascular birthmark. Complete your survey and mail to Corinne Barinaga, c/o VBF Director of Information Services, PO Box 106, Latham, NY 12110.
  • Before you visit, email, or speak to a birthmark specialist, be sure to read our Checklist for Parents!
  • Dr. Rosen's Vascular Birthmark Information for Parents
  • Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.

You will need Microsoft's Word to open and print the Word Documents.

RECRUITING SUBJECTS FOR A RESEARCH STUDY ON FACIAL BIRTHMARKS